Sunday, August 23, 2009

no weight gain

Well now I "get it". Ive been on prednisone for such a long time and never gained weight like everyone says your suppose to. Hey no complaints but I saw a doc a few weeks back and just by my explanation of symptoms and one look he sugested thyroid problems. the blood test came back that it was my throid-thus the no weight gain and possibly my heart problems. So they are running another blood test to check exact levels of thyroid and will than put me on meds for that. It has been said that once you get one auto-immune disease others follow. I was told the problem with my thyroid is also auto-immune. im not worried cuz i hope this medication will help with the rapid heart beats. My body is essentially in workout mode, therefore my heart rate is elevated and metabolism is high, so no weight gain. If the only side effect I had was no weight gain id be fine with that but the rapid heart rate really isnt fun. Anything I do I have to rest, not so much cuz im tired but because it feels like a heart attack. Im relieved to know my heart isnt causing this. Now I pray i dont blow up like a balloon. only time will tell.

Tuesday, August 11, 2009

thank you dm

I do not like my condition, but it has opened my eyes to things I never even bothered to look at before. I wonder what my life would be like if I never had DM. I was in car accident when I was younger and was told I should have died. Yet I didnt listen and continued on my path of speeding and feeling untouchable. I had the world at my tips. I really wasnt bad but didnt really care or enjoy the small things. I remember when i was learning to walk again after my diagnosis I stood outside and felt the sun on my skin after six months of being pretty much immobile. The feeling was wonderful, the sun and the use of my legs was awesome. So much of how I see people and life has changed. (For the better) I still do feel down sometimes and frustrated, but we all do i guess. its life sick or not. Part of me hates this condition and part of me thanks this condition. I have my beautiful son and a new outlook and for that I thank you dm. ;)

Thursday, August 6, 2009

MRI RESULTS

well i saw my rheumatologist yesterday and my mri results on my legs were in. I had an mri done on them because i get alot of pain in them. My cpk is controlled and i think i am in remission yet the pain continues. So an mri was ordered and the results were that I had an extensive amount of fluid in the fascia of my legs-between the muscles. Furthermore I had extensive amounts of abnormal tissue. Those are probably the lumps i feel behind my legs. They concluded, however that the fluid was not drainable. So i ask my doc. what do I do now? Do I live on pain killers for ever? I deal with it? He is going to try to give me IVIG transfusions again to see if they help. I knew something was wrong. I am so in tune with my body and i can honestly say i have never been wrong when I feel something is wrong. So if your cpk is controlled yet you still have pain it is so possible and could be something like mine. i guess the dramatic change in my muscle structure because of dm left me with these results. i hope the IVIG works. Still waiting till monday for cardio results.